Understanding the disease
Putting words to symptoms, diagnosis and conversations with healthcare professionals.
Personal testimony about ulcerative colitis and Crohn's disease
Living with IBD without giving up on life
I have not been cured of ulcerative colitis. I have learned to live with it, recognise my limits and not let it stop me from living. The diagnosis itself was uncertain for a while, hesitating between ulcerative colitis and Crohn's disease: the line between the two forms of IBD can be thin, and a good part of what I share here applies to both. I share my journey, the difficult periods and what helped me take an active place in my everyday life.
Practical reference points
Reference points for living with IBD
Getting through flare-ups
Talking about fatigue, pain, hospital stays and the unexpected parts of everyday life.
Living with your limits
Learning to recognise your signals and adapt your pace without giving up on your plans.
Finding your everyday life again
Sport, breathing, relationships and balance: finding what helps you keep living.
The book — coming soon
UC: Living Without Medication
My Path to Freedom
Ten years of ulcerative colitis, then ten years without medication. In between: cold, breathing, fasting, sport, and a lot of failed experiments.
Here, short ways in to recognise yourself and begin. In the book, the full story and the episodes that built this path.
Where to start
Important: this website and the book are a personal account. They do not replace medical advice.